Thursday is his last day for his Valganciclovir. He only will get his morning dose on Thursday, so he really only has 3 more doses. The infectious disease doctor ordered her last blood work for Benz. His neutrophil number was 1500 which is OK considering he is done with his meds that have been keeping it down on Thursday. Bummer and I think Benz will be a new boy when he is off these treatments.
Help Me Grow has come to our house a couple of times to do Benzen's evaluations for physical therapy and occupational therapy. They said he was right on track with what he needed to be doing. His muscle tone was good. They will now only be coming once a month to check his progression.
I can't believe it has been seven weeks already! He still only seems like a three week old because that's how long he's been home. He still hasn't even met his cousins yet. They are all chomping at the bit to meet him. It is my moms birthday this weekend and we can't wait to get to the lake and start having some fun in the sun.
Beyla is still obsessed with Benz and she is a really good helper. Anytime he cries she is right by his side to say "it's ok Benzen, it's ok Benzen" or "hi Benzen, hi Benzen". They took a bath together for the first time this week and she thought it was hilarious.
Sorry no life lesson or song tonight. I know boring right.
That's it for now,
Ben
The above photo of Beyla and Benz is actually a video. You may have to watch it on a computer as some phones or IPads/ tablets may not play it. Enjoy the blog and Video :)
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Blog management
(Auntie Ashie)
A Mornit Little Remer Family! Can't wait to hear how he does when he's off the meds. Sounds like things are "normal"? What other tests have to happen to see about sight, hearing, and being able to deal with the masses? (Meg still prefers her students over "us"). As far as life long lessons or songs, after some life altering experiences when people ask me what's new I say "Nothing, and that's o.k.". After reading one of your blogs, I was cooking and listening to my iTunes looking for something that was inspirational to pass on to you, and it's all "You done me wrong, but I can still kick your butt" stuff. Sorry.
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Josie
Enjoyed reading your blog. Maybe boring is good! Maybe it's the closest to feeling, well, normal. I appreciate how you guys see the blessing in so many things. It certainly changes one's perspective. I hope and pray that you have more normal, wonderfully boring days ahead.
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