Today was a relatively quite day for Benzen. He has been under photo therapy for about two days now. He looks much better and he is much more active. He also is eating better. He gained 4.75 ounces in the last 12-24 hours. I'll be glad when he is done with it. Really, no test results came in, no tests were done, his vitals are great, and his blood work looks good.
I don't know if I mentioned this but the medicine Benzen is on (Ganciclovir) is just a notch below Chemotherapy. One of Benzen's guest today was my God mother Marty Perkins. I had heard Marty was coming and I was so excited! She is a breast cancer survivor, strong person, and always a joy to be around. More importantly someone that could relate to the medicine Benzen is getting. As soon as she held him there was an immediate eternal bond.
My 24 hour feel bad for yourself time was up this morning. I am really excited about what my new path has in store for me. Marty asked me today if I wished I could speed up time. I think my response was something like "as long as there is no more bad news, but no I would not" I think Benzen is where he needs to be. He needs to relax, get this medicine, and take things slow. We could not really do that at home. Another thing my dad always told us was "feel the time." Meaning there are moments in our lives we think will last forever but they are over in the blink of an eye. So take it all in while your in the moment.
Thanks for all the love and support-I feel it all!
Ben
Ben and Amy,
ReplyDeleteI struggle with this in passing on the crohns....if you had known 100% this was going to happen if you tried for baby number three, would you still have done it, or would you have had more hesitation?
If it's too personal I understand, just something I've been thinking of.
Ben and Amy- I love reading the blog. What a great way to get the word out! When I think about when my kids were born, this wasn't even a concept, well at least in my mind. The picture is WONDERFUL! Just love it. Can you add pictures with all your posts? (typical me, ask my kids "why don't you do THIS and what about THAT?" sorry.
ReplyDeleteBen,
ReplyDeleteYou have such an amazing heart and outlook! We are praying for you daily and Benzen. God has a purpose in everything. I love the advise that your father gave you. Live in the moment! Cherish every minute, no matter the circumstance. GD BLESS YOU ALL!!
Ben your family's story is so touching I find myself waking up eachday and checking to see if more is added on your blog its both amazing and inspiring and you all are extremely strong and lucky to have each other. May God bless you and your whole family especially little baby Benzen.
ReplyDelete