Neurologist Appointment

We met with one of the neurologists that read Benzen's MRI.  He was one of the people that told us benz would never be a "normal" boy.  I was so nervous about what he would have to say, but couldn't wait to hear it.  We got there and first of all they weighed him and he weighed 11pounds with his clothes on, but still, he's growing up too fast.  Then Dr. Maiteh came in.  He gave Benz a once over and asked us some questions.  The results were that Benz was doing better than expected.  Benz is right on track.  All in all Amy and I think this was a great appointment.  Dr. Maiteh even said to us "I was really worried about this boy when I saw him and the MRI when he was in the hospital.  I am glad to see he is doing so well.
On the MRI they saw periventricular calcifications and abnormal White and grey matter.  The Dr. will order another MRI in a couple of months to see how it looks as Benz grows.  The possibilities are, the calcifications could go away and leave behind a scar.  They could stay the same.  They could get bigger. Or the best case would be for the calcifications to be gone and leave no scarring.  Obviously, this is what we are hoping for. 
Benz is still a great baby.  He is getting so big.  Its hard to believe he gained 5 pounds in 2 months.  He has an ophthalmologist appointment this week.  Beyla is still completely in love with him.  She has to kiss his head and all of his toes a couple times a day.
The pic above is Benz on the pontoon boat this morning (and we are docked, otherwise he'd have a life jacket on, of course!).  He loves to be outside.  The pontoon boat is called Remi's ride.  When Remington was in the hospital my dad promised her a new pontoon boat.  We went and bought it a month or so after she died.  We all love to take those long slow rides and think about her.  She would have been 3 this summer.  I think that Remi is watching over Benz and  pulling some major strings.
Good Night,
Ben