Benzen Emri

First of all, sorry it has been so long.  Benz has been doing really well since I last updated.  He is now 7 months old....

We had our follow up appointment with Dr. Maiteh today.  He gave us the best news to date.  He said Benzen's muscle tone, awareness,...

This is Amy's Face Book Post from 8-7-12...Benzen continues to surprise everyone! As of today, the audiologist says his hearing is...

Benzen will be 3 months old tomorrow.  I know I say it every week but, he is really coming into his own now.  He is starting to ...

We met with one of the neurologists that read Benzen's MRI.  He was one of the people that told us benz would never be a "normal...

Just to keep things interesting, a couple of days ago Amy was changing Benzen's diaper and noticed that his groin area was swollen.  S...

Benzen is now done with his Valganciclovir.  Last Thursday was his final dose.  As we suspected he seems to be feeling better.  He is a ...